rare disease

Predicting North Star Ambulatory Assessment trajectories in Duchenne muscular dystrophy: A mixed-effects modeling approach

A prognostic model for predicting individual 5-year motor function trajectories in Duchenne muscular dystrophy patients using the North Star Ambulatory Assessment.

Survival among patients receiving eteplirsen for up to 8 years for the treatment of Duchenne muscular dystrophy and contextualization with natural history controls

Long-term survival analysis comparing eteplirsen-treated Duchenne muscular dystrophy patients to matched natural history controls, demonstrating survival benefits with treatment.

Pathway for Development and Validation of Multi-domain Endpoints for Amyloid Light Chain (AL) Amyloidosis

A framework for developing and validating multi-domain composite endpoints for AL amyloidosis clinical trials, developed through a public-private partnership with the FDA.

Long-term treatment effects of inotersen on health-related quality of life in patients with hATTR amyloidosis with polyneuropathy: Analysis of the open-label extension of the NEURO-TTR trial

Long-term analysis of health-related quality of life outcomes in hereditary transthyretin amyloidosis patients treated with inotersen, demonstrating sustained benefits over extended follow-up.